This guide is fine—solid basic info, and I appreciated that it didn't try to scare me more than the doctor already had. The chapter on what it actually is helped me finally understand the skull thing. But I wished it had more specifics on treatment options and less on general 'talk to your doctor' advice. It's a good starting point, just not as deep as I wanted.

I found this after my mom's diagnosis and I honestly felt like someone finally explained things in a way we could both understand. Chapter 1 alone was worth it—it put the whole thing into words I could repeat back to my sister. The symptom table was super helpful for knowing what to actually worry about. Definitely a keeper for the first few weeks.