The Unprofessional Guide to cranio-facial dystonia
A Plain-Language Guide for Patients and Caregivers — What You Need to Know, What to Expect, and How to Cope (For Informational Purposes Only)
by Alumigogo Books
non-fiction
What is cranio-facial dystonia? Why did this happen? What happens next? This friendly, plain-language guide walks you through it all — no jargon, no panic.
About this book
So you got the diagnosis: cranio-facial dystonia. Maybe you've never heard of it, or maybe you've been spiraling through web searches that only made you more confused. This guide is the crash course you wish you had on day one — a warm, honest walk through the actual facts, written for real people, not medical students.
Reader Reviews
Linda Lee
★★★★★Finally a guide that doesn't make me feel like a lab rat. The chapter on what cranio-facial dystonia actually is — with the electricity talk — made my husband finally 'get it'. It's not scary, it's just factful. I docked one star because I wished it had a bit more on diet, but honestly, the Q&A chapter alone is worth the price. I feel like I can walk into my next appointment with actual questions instead of just nodding.
Jonathan Smith
★★★★★It's decent. I've read a lot about this disease and was hoping for more depth on treatment options, but the plain language is refreshing. Chapter 4 about getting diagnosed brought back some memories — the checklist was actually decent. It's a good starting point, but experienced patients might find it a bit basic. The tone is nice though — like a friend, not a professor. I'll pass it to my sister who just got diagnosed.