Cover of The Unprofessional Guide to epithelial and subepithelial dystrophy

The Unprofessional Guide to epithelial and subepithelial dystrophy

A Plain-Language Guide for Patients and Caregivers — What You Need to Know About Epithelial and Subepithelial Dystrophy, For Informational Purposes Only

by Alumigogo Books

non-fiction

Scared by your diagnosis? Here's what's actually happening, what to expect, and how to cope — in plain English, with no jargon and no false hope.

Paperback
Instant EPUB/PDF download included
We'll ask where to ship your paperback after checkout — US & Canada only (other countries get a refund of the paperback/eBook price difference and stay eBook-only)
Back to School Sale
$20$10Save 50%
# of copies
Read a free sample →More suggested books...

About this book

You've just been told you have epithelial and subepithelial dystrophy, and your brain is likely a spin-cycle of questions: Is this serious? Do I need surgery? Will I go blind? Did I cause this? The answer, as you'll learn, is more nuanced than a Google search would have you believe — and the fear you feel right now is probably worse than the condition itself.

This unprofessional (in the best way) guide is written by someone who's been in your shoes, or at least has done the research so you don't have to. It breaks down what this condition actually means for the surface of your eye, how it tends to behave over time, and what your treatment options really are — from prescription drops to procedures, and everything in between. It includes a symptom chart, questions to ask at your next visit, and real-talk about living with the condition day to day, including when to tell your boss and what to say to your partner.

This is not medical advice — that's what your doctor is for. But this is the companion guide they don't hand you at the door. It's honest, warm, and a little irreverent, because humor helps when you're scared. You'll finish it feeling calmer, more informed, and ready to take the next step — whatever that looks like for you.

8 chaptersaprox 17,800 wordsabout 71 pages~89 min read

Reader Reviews

Jennifer Torres

★★★★★

I got my diagnosis on a Thursday and cried for two days straight. This guide was the first thing that made me feel like I wasn't alone or losing it. The chapter on what the heck is even happening in my eye was written like my best friend explained it to me — no big words I had to look up, no doom and gloom, just honest info. The symptom chart finally showed me what was 'normal' vs. worth a phone call. I brought the question list from the last chapter to my follow-up, and my doctor actually seemed happy I had it. Highly recommend to anyone staring at this diagnosis in the mirror.