The Unprofessional Guide to hereditary sensory neuropathy

I found this guide genuinely helpful, though I admit I wanted a bit more depth on some of the treatment options. The chapter on day-to-day life was the one I kept going back to. If you're like me and just got the diagnosis, it's a decent place to start instead of spiraling on the internet. It's not perfect, but it's honest.

As a caregiver for my wife, I appreciated that this guide didn't talk down to me. The chapter on what not to say was a hard truth I needed to hear, and the caregiver checklist is now stuck to our fridge. It's a bit informal in places, but I'd rather have a friendly voice than a dry textbook. Four stars.

I've read every medical pamphlet my doctor gave me and understood none of it. This guide finally explained what hereditary sensory neuropathy actually is, without making me feel like I needed a medical degree. The chapter on 'Why Did This Happen?' got me to stop blaming myself, which was huge. It's like having a really smart, kind friend in your corner.

The questions to ask your doctor list alone is worth it. I brought it to my first appointment and my neurologist actually seemed impressed. It's not a cure, and nothing can be, but this guide gave me a way to talk about what I'm going through without crying every time. A good, practical resource.